Lots to think about

I had asked for this a few weeks ago and today was the day. Two very pleasant young women (young to us) came to see us. They asked lots of questions and answered our questions.

Caring for my mother who has Multiple Sclerosis has become gradually more challenging. Having talked to these two specialist nurses we now know where we are at with this progressive condition.

It takes two of us to get mum in and out of the car. They suggested that we forget about taking her anywhere in the car. This doesn’t mean that she will never leave the house again. Instead I need to apply to our local council for taxi vouchers. For hospital visits etc we need to call a wheelchair accessible taxi so that she can leave the house in her wheelchair and stay in it from start to end.

She can also go to exercise classes run by MS society so that she can meet with others in the same boat and give me some alone time. We can get dial a ride to collect her and bring her back.

Then there is the question of getting her in and out of bed. The time is fast approaching for us to engage a carer to come in each morning to assist her with getting up washed and dressed. We both knew this was inevitable but being told that the time has come is kind of a weight off my shoulders deciding when and how to do this

There is also the decision that it’s time to think about moving her bed downstairs. When we do this I will move my things out of the dining room up to the bedroom.

We discuss other things to make life easier for both of us but that’s enough for today.

I feel as though a weight has been lifted off my shoulders but at the same time a feeling of deflation.

We have both been in reflective mood today with random thoughts about it all being spoken.

Mother had said that she now has to accept that her life has changed. She needs to go with it rather than fighting it.

When will it end?

What with all my poor health of late. I just wonder what life has in store.

I have numerous friends dealing with horrific health problems. No I’m not the only one.

Then last week my gorgeous, smart, loving daughter in law had surgery last week for an ectopic pregnancy. That would be bad enough but this was the second in under a year. Making this not only a tradgedy in itself but life changing for her and her little family. She so wanted a second child.

Several months ago I learnt that my best friend from school had lung cancer. If that wasn’t bad enough her brother died of covid at the start of the year. My friend and I had lost touch for a number of years when our children were young. In those days there were no mobile phones and no internet. I found her again through Facebook about 8 years ago.

We both had busy lives and always promised we would meet up again at some point. I had moved away from the area 33 years ago. Our communication was intermittent but we were still in each others thoughts. During one of our more recent communications I had promised that providing I was well enough I would make the effort to go and see her this summer.

Unfortunately it is now too late. My dear friend passed away peacefully yesterday morning.

Why is it that the good people in this life have to suffer so much.

Weighing up the risks

I have been in hospital since Monday morning. (My first ever trip in an ambulance).

I have appendicitis. I have been in incredible pain since Saturday morning. Normally I would have had my appendix out days ago. I’m a complicated case. Taking Ng out my appendix is a risk of damage to other organs.

The dr keeps telling me every day that my blood tests show I am getting better with antibiotics. I keep telling him I am not getting any better. The pain is still just as bad.

Another Dr has just gone to look at the scan I had earlier. Hopefully they can then come up with a plan.

The sun came out today.

All through May we have had lots of rain and not much sun. For many of us we still have our heating on. After all my excitement at getting our washing line put in 10 days ago, I have not been able to use it yet.

Today the sun has been out. It has been our first warm day. I actually went out without a coat/jacket. I have seen photos of friends enjoying a drink in the sunshine. Others have been on lovely walks in the sun.

My views today have been from hospital windows. Today was the day for my colonoscopy. Yesterday l spent the day drinking 4 litres of klean prep to clear my body out. ( No food after 8am and that was only rice crispies.) My day was spent in the bedroom so I could be close to the bathroom.

This morning I subjected myself to the hospital staff. I must say that I had a very kind gentle Portuguese male nurse looking after me. He was so considerate of my feelings and comfort when he needed to insert a cannula. I had told him of my needle phobia. He took the time smoothing my hands and arms to find the best vein he could. Apparently my veins were very wobbly.

He promised me that he would only make one attempt to get the needle into me. It did take time before he finally pierced my skin. Success first time. It was then time to don the non flattering gown and paper knickers.

A few minutes later I was in the room where the procedure was taking place. I remember getting into position on the bed and a sedative being put through the cannula. I was aware of being wheeled into the recovery room.

As usual after an aesthetic I was being sick. I was informed that my ride would be here at 11.30. I asked what time it was now. 11.15. ( no way would I be ready in 15 minutes). I let him know to come back in an hour.

After all that it seems that my fickle body has yet again come up short. This is not the first time I have had an invasive investigation that couldn’t be completed.

“Procedure limited by benign stricture” Further investigations required.

Next step is for a CT scan. Oh great joys. I don’t mind these but it usually involves having another cannula.

Being unfamiliar with this hospital it didn’t help that there is construction work being carried out which made finding the drop off and collection point difficult to find. I was dropped off at the wrong side of the hospital. I was being collected from the same place. This meant that I had a long walk going to and from my treatment. A very kind make nurse carried my bag walking me back to the pick up point only to discover that my lift had managed to find the main entrance after all. More walking followed. I was so relieved to finally find my car. 2800 steps isn’t much but right now to me that was a huge effort.

Having left home at 8am I was back home at 2pm and went back to bed. Having had a deep sleep I returned to the land of the living just before 5pm. I am now starving, my stomach is rumbling. I shall be ordering a take away to be delivered tonight. Do I opt for chips or Chinese?

Tomorrow is another day. At least I can put today behind me and know that I won’t be going through that again.

I am hoping that tomorrow I shall be able to go out in the garden to soak up some 🌞

Spanner in the works

I had it all planned out. Books out for collection Friday, Monday, Wednesday and Friday that takes me almost to the end of the month. I was late getting started this week. Then other things got in the way so there are no books out for me to collect today.

Because of my low energy levels I’m only putting out around a dozen books each time. So now I need to do a few more each time to get round to all of my customers.

I found out this morning that I am having an endoscopy next Thursday. Which means a covid test on Monday. Then self isolate from Monday to Thursday. I am likely to be feeling rough on Friday.

I am now going to attempt to get all my books out for pick up this Friday and Monday. I won’t be able to do a pick up next Wednesday so no point putting any out for then.

I did know that I would be having an endoscopy within the next two weeks but hadn’t considered that I would still have to isolate after all have had both jabs and putting out and picking up books doesn’t really involve seeing anyone.

The domino effect

It feels to me that I am experiencing the domino effect. Each domino that falls knocks the next which then leads to the next.

Dominoes

Each time I have any serious health issues I get radical treatment which cures the problem.

Unfortunately that treatment leads to another serious problem. That then gets treated but then leads to the next problem.

I am currently waiting for a date to have an endoscopy to rule out cancer. I’m feeling a bit anxious if truth be told.

Once, twice three times a doctor.

This morning my day started with a very long chat with my sister in law. We keep up with what each other is doing via Facebook buts it’s been ages since we had one of our long phone chats.

Not long after that my phone rang. It was the hospital. (Not the one I usually go to). They have got the results of my latest blood tests. I am now booked in for a telephone appointment on Tuesday afternoon.

Half an hour later another phone call from the hospital. This was a wrong number as I am not and never have been called Mary.

I have been feeling out of sorts today. I have had some news that although not altogether unexpected still shook me up a bit. I felt the need for cake. So before putting out my books I went to the shop. I was wandering around at a slow plod when my phone went off again.

This time it was the doctor I spoke to 2 weeks ago. She apologised that everything wasn’t progressing as fast as she had hoped. My latest blood test shows that my iron level is steady. Still very low due to iron deficiency.

She has prescribed iron tablets but I’m not to start them until I have had my telephone consultation with the hospital. Depending on how they want to proceed the iron tablets might be a no no. She says my vitamin b12 is ok, on the low end of the range but not too low.

At the moment everything hinges on this telephone call on Tuesday. I want to get this sorted out but I’m worried about what it will lead to.

I’m not looking too far into the future just taking it one step at a time.

I had been hoping to write something light hearted today as my last few posts have been a bit depressing. Maybe tomorrow I will have something happier to post.

Fractured not broken

The other night and it was at night I wrote a post about waiting. I wrote it because I had been reading Abbie Greaves book The end of the Earth. It had taken me back to when I was a young adult. I couldn’t sleep because of the thoughts going round and round in my head. Once I had written it and I apologise I didn’t read it through so there are bound to be errors.

One of my new blogging friends Bitchy after 60 commented that with everything I have been through it would have broken most people.

That post only scratched the surface of what my life has been like in the last 50+ years. I’m not broken yet. I have many emotional fractures and my body is falling apart but nothing has broken me yet.

Last night mother asked if I had experienced depression or anxiety in the last year. The question was in relation to the covid-19 pandemic. The answer is no. I am lucky to have technology that has allowed me to keep in contact with family and friends. I could also order whatever I needed online. I also have plenty to keep me occupied. My garden, reading, knitting etc.

That doesn’t mean I haven’t experienced anxiety or feeling in low spirits. I have but more in respect of my health than the pandemic.

Waiting

Last week I wrote about Abbie Greaves book The Silent Treatment and I was looking forward to reading her second book The Ends of The Earth. I finished reading it a couple of days ago. I would recommend it however it is a heart felt tale of love and pain.

Reading this book was bitter sweet for me. I enjoy Abbie’s writing but some of the characters took me back to my past. I’m not saying that these characters in anyway resemble me or my past. There are aspects of this sad tale which remind me of one of the bad times in my life.

Some people in my real life know bits of my story but I guess my mother is the only one who knows most of it and even so I didn’t divulge some of my truth until many years later.

When i was 20 I had been engaged for 2 years to M. After a falling out with his mother I was treated more like his mistress/dirty secret than his fiancé. Eventually I had had enough and broke it off. Some months later I began seeing A. He was an older man but we got on really well and he treated me so much better. He was serving in the army but we spent as much time as we could together. We had mutual friend that he stayed with at weekends.

At the time I had joined the Territorial Army in my spare time. I remember once being embarrassed when A had dropped me off for my weekly training. Someone commented about my dad dropping me off. Anyway it was t few days after my 21st birthday that I had been away on a weekend training exercise on Salisbury Plain. When I got back on Sunday night A met me at the barracks to take me home. He took me to our friend’s flat.

He wanted sex. I was tired, battered and bruised. I wanted nothing more than to sleep. He forced himself on me. I made it clear I wasn’t in the right frame of mind or body for sex. That didn’t stop him. I don’t remember how I got home, I guess A drove me. The following Saturday he came to see me. I told him we were finished. He was not happy. He raped me in my parents living room. I never saw him again for which I was glad. I never told anyone what had happened.

At that time police were not sympathetic and I knew that I wouldn’t be taken seriously, after all he was my boyfriend and this was years before domestic rape was recognised. Later I. The year I got back together with M. It didn’t work out, I had changed. Not only that but I found being alone with him difficult. I couldn’t cope with intimacy, I would always see the face of A looming over me. After several months I broke off my relationship again.

I found an ad in the local paper for a week in Austria traveling by coach. By this time I was 22 and in need of a break. I was travelling alone. Being one of the last passengers to catch the coach I had a seat behind the driver. During the long drive I got chatting to both drivers. Once in Austria we were split up around the village. If memory serves me right there were three of us staying in the house where I was staying.

Through out our stay there were events and trips each day. Most of the group were couples or groups. I was just me and often found myself with the drivers and our tour rep. Looking back I know that was a mistake. I was beginning to feel an attachment to the taller of the drivers C. We were spending more and more of our spare time together. Until I ended up spending the night with him. C was an older man (apparently I prefer older men), but younger than A. Amazingly when I was with C I didn’t see A’s face.

By the time I returned home we had swapped phone numbers. He had my home number and my work number. Whenever he was between trips I would catch a train to London where we would stay in cheap hotels. He told me he wouldn’t marry me but he wanted us to live together. I spent a few days with him staying with a friend of his. I applied for a job at his local airport.

Then the unthinkable happened. I hit a call from an older woman claiming to be his wife. S was 14 years older than him and he was 14 years older than me. I guess I will never know the real truth. C told me that he had married S to help her and her two daughters (my age). Every time he tried to leave her she cut her wrists or some other cry for attention.

For months I had to have my calls screened both at home and at work. S or her daughter would call me saying nasty things. I stopped seeing C. Then one night he arrived at my home saying he had left her. He couldn’t take it anymore. The next day we found a bedsit near to my work. That first week it was great coming back every evening to my meal cooked for me. The two of us together making plans. It wasn’t so great for C, he wasn’t used to being in a strange town alone all day with no work. It was his off season.

He told me that he had a friend in Norfolk who could give him work as a taxi driver Monday to Friday. He would be back at the weekends. He never came back. I refused to get upset. I couldn’t phone him, we didn’t have mobile phones in those days. After a few weeks I had a phone call from the Samaritans supposedly searching for C on S’s behalf.

I stayed at the bedsit until the end of our 3 month contract then moved back to my parents. While I was at the bedsit I didn’t see anyone outside of work and a few visits to my parents in the next town. I couldn’t give up on C, I couldn’t forget about him and move on. I needed to know where he was and what had happened. I kept my grief tucked inside me. I never cried, my health began to suffer.

I remember one day phoning my mother at work in a panic. I felt as though my life had collapsed, I didn’t know how I would get through the next minute let alone the next hour. I don’t remember what happened next but I got through the day. My work was suffering, eventually I handed in my notice. I knew I couldn’t carry on with my job in the state I was in.

I managed to persuade my Dr that I needed help but I didn’t want pills. He arranged for a councillor to visit me at home. Unfortunately he was about to change jobs so I only saw him the once. He told me that I was clinically depressed. We went through everything in my life that was making me feel so bad. That helped, just breaking it all down into different problems.

About a month later I got a job working in a bar then a job as an hotel receptionist. One afternoon on my way home I stopped at our local supermarket. On the way out I saw a face I never expected to see again. It was C. He waited for me to walk me home. As soon as I was home I ran to the bathroom to be sick.

It was 11 months since he had left me. He thought he could pick up where he left me. He explained that he had gone to Norfolk as planned but he had phoned home to check how S was. She was in hospital after another suicide attempt. So he went back to look after her. Now she was well and he was able to leave. I saw him a few times over the next couple of months.

I became pregnant, he said he was decorating the flat for S then we would be together. I lost the baby. Suddenly he was unavailable again. He did arrange to see me over the August bank holiday. Bizarrely I stayed with his younger step daughter and partner. We had become friends over the phone. She didn’t agree with how her mother and sister had been towards me. Anyway when I was supposed to see C it was S who turned up. I was suddenly very ill in the bathroom. Later we spoke and found that neither if us were the bitch we had thought.

Over the years I have wondered what happened to C and S. I moved on with my life. I met the man who gave me my four sons.

Abbie’s book was nothing like my story but it did get me thinking about it. I just remembered that one of my colleagues way back then once said to me. ” Your live life might not be happy but it’s interesting” . Thinking back on that comment I don’t know why she thought it was interesting.

Was my body ever a temple?

I’m thinking obviously about the saying that your body is a temple.

This is how I thought of my body three years ago https://ladyinredagain.com/2018/01/10/my-body-is-a-temple/

Now I think my body is more like a colander. Until you plug the holes the water or in my case iron will just keep running out.